I (Nicki) came home late last night. It was very hard to leave the hospital without our baby in the carseat that's waiting in the back, but we know she's right where she needs to be right now. Another perk that made it easier to go home was that we got to really hold Paige for the first time before we left! She is now completely off oxygen, and the arterial line was removed yesterday, and she tolerated the removal well, so she got to leave her Giraffe (the special bed she's in) to hang out with us before going for an MRI scan of her head.
The contraption she was in for the MRI is really impressive--like a baby rocket ship! It's designed so babies will stay still, can still be monitored and have all the things they need connected to them (IV meds, oxygen, etc.), and not damage their hearing--they strap them in and run the whole enclosed bed through the scanner. Apparently she didn't mind it at all...now we wait for results.
We called before going to the hospital this morning, and learned of a few setbacks...first, her platelet level dropped too low again, so she'll need another transfusion of platelets (the stuff in blood that helps it clot). Second, she was not tolerating her feedings of breastmilk through her new feeding tube in her nose, so they have to stop until her belly absorbs it better. Hopefully these are just temporary bumps in the road, and we'll find the causes soon.
That's all for now...thanks again for the prayers--keep 'em coming!
Lots of love and prayers coming to you and little Paige. She's beautiful!!
ReplyDeleteLove...your long lost cousin Sara (Garn)
Glad to hear you both got to hold her. Love, Emi and Chris
ReplyDeleteThat must have been amazing to hold her. I will keep praying. You know how it goes in the ICU, one step forward two steps back. You will get there.
ReplyDeleteDo they given you any answers as to why this is happening?
Matt and Nicki, I am so glad to hear and see little Paige is making strides! She is gorgeous just like her mom! You are in my prayers...God is so good! What a little miracle!
ReplyDeleteLove, April
We're so happy you both got to cuddle with your little peanut! Can't wait for another update...you're in our thoughts and prayers!
ReplyDeleteSo glad to read about Paige doing better! I hope she continues to make good progress and go home soon! I hope you guys are getting some sleep at night because once that beautiful baby is home, you won't get much more! :) Looking forward to the next update. We're praying for you guys!
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